Legacy and Supporter Relationships Manager

Huntington's Disease Association

Hours
35 hours per week

About the Organisation

Huntington’s Disease Association provides specialist support to people affected by Huntington’s disease across England and Wales. The charity was founded in 1971 after a family who had been given a diagnosis of Huntington’s put a letter in the local paper asking if anyone knew of any other families in a similar situation. It began as a self-help group with 76 members and was known initially as the Association to Combat Huntington’s Chorea, later becoming the Huntington’s Disease Association. We raise awareness of Huntington’s disease and offer practical advice and support, training to health and social care professionals, and fund research into the disease. We want a better life for anyone affected by Huntington's disease.

About the role

To steward and grow relationships with our individual supporters across every stage of their journey with the Huntington’s Disease Association - ensuring that however someone first connects with us, they feel known, valued and inspired to stay with us for life. This role leads on legacy and in memory fundraising, two areas of significant strategic importance to us, whilst sustaining and developing our wider base of individual donors through appeals, regular giving and digital communications. Working closely with colleagues across fundraising and communications, you will help ensure that every supporter feels genuinely connected to our cause and to the community of people whose lives are shaped by Huntington's disease.

The Legacy and Supporter Relationships Manager is part of a small, collaborative fundraising team comprising a Trusts and Foundations Manager, a Community Fundraising Coordinator, a National Activity Events Coordinator and a Fundraising Administrator. The Head of Fundraising leads on corporate partnerships, major donors and fundraising strategy. Each team member works with a degree of autonomy whilst contributing to shared income goals and a collective approach to supporter care.

Responsibilities

Legacy Fundraising:

• Monitoring Smee & Ford for new legacy notifications and managing all correspondence with solicitors and executors across our active estates in a professional and timely manner
• Recording and maintaining accurate legacy records on Donorfy and the
• First Class portal, and filing all relevant documentation
• Notifying the CEO and relevant trustees of new notifications, estate accounts and other significant updates
• Adding legacy gifts to Donorfy and ensuring solicitors and executors receive appropriate acknowledgement for their role in administering estates
• Developing and delivering a legacy marketing programme that builds awareness of gifts in wills, cultivates prospective pledgers and stewards existing pledgers with meaningful, personalised communication
• Monitoring the Free Wills Network for new referrals and pledges, maintaining accurate records on Donorfy and ensuring pledgers receive appropriate acknowledgement and ongoing stewardship
• Identifying opportunities to convert engaged long-term supporters into legacy pledgers, using supporter data and insight to inform approach  In Memory Giving

In Memory Giving:

• To steward and develop our in memory giving programme, recognising the particular sensitivity required when working with bereaved families and the long-term potential of these relationships. This includes:
• Building sustained and sensitive relationships with next of kin beyond the initial acknowledgement, deepening their connection with our charity over time
• Developing in memory giving as a growing income stream, identifying opportunities to improve the supporter experience and increase income
• Working with the Communications team to ensure in memory giving content across digital channels and the website is appropriate, up to date and compassionately presented

Individual Giving - Stewardship And Development:

• Stewarding and retaining our existing base of regular and single donors, ensuring they receive warm, timely and relevant communication throughout the year
• Monitoring retention indicators across the individual giving portfolio,  identifying and responding proactively to any signs of lapsing
• Using supporter data and insight (including findings from our ongoing supporter research) to improve segmentation, personalisation and the overall donor experience
• Identifying opportunities for supporter upgrade and conversion, recognising that many of our supporters move through multiple giving relationships with us over the course of their lives

Appeals and Mailings:

• Project managing a small number of fundraising appeals across print and digital channels, and our impact report mailings, working with the
• Communications team on creative development, our data manager on segmentation and coordination of the mailing house
• Writing compelling fundraising copy that reflects the deeply personal nature of our cause and the long-term relationships our supporters have with our charity.

Digital Donor Journeys:

• Working closely with the Communications team on digital donor journeys, including onboarding and email stewardship, providing clear fundraising briefs and sign-off on fundraising content
• Ensuring individual giving is actively and consistently promoted digitally, identifying opportunities in collaboration with Communications across email and social media channels
• Using supporter segmentation to ensure digital communications are relevant and personalised to different donor groups and stages of the supporter journey.

Cross Team Collaboration:

• Working collaboratively with the Community Fundraising and National
• Activity Events Coordinators to ensure that supporters who both fundraise and give individually receive joined-up, consistent stewardship, with clear mutual respect for each colleague's supporter relationships
• Contributing positively to a team culture of shared ambition, open communication and collective problem-solving

Reporting And Income Accountability:

• Monitoring and reporting regularly on individual giving income performance, contributing to the fundraising team's collective accountability for income goals
• Maintaining accurate and up-to-date records across all individual giving activity in Donorfy, ensuring data integrity and GDPR compliance

Other Duties:

• Attend and contribute to team and charity-wide meetings.
• Be familiar with and adhere to relevant legislation.
• Work collaboratively with colleagues from other teams across the organisation.
• Understand our obligations under the Data Protection Act, Fundraising
• Codes of Practice and the Information Commissioner’s Office in relation to data management, and ensure the Huntington’s Disease Association acts in accordance with legislation.
• Respect the confidentiality of all information obtained whilst working for the Huntington’s Disease Association.
• Work in a manner that facilitates inclusion, particularly of people affected by Huntington’s disease.
• Carry out other tasks as directed by your line manager.

Skills, Competencies, Experience & Attributes

Experience, Knowledge & Skills:

• Demonstrable experience in individual giving fundraising, with experience across at least two of the following areas: legacy marketing, in memory giving, fundraising appeals, regular giving
• Strong project management skills, with experience of taking fundraising or communications projects from brief through to delivery
• Excellent written communication skills with the ability to write warmly, compellingly and sensitively for a fundraising audience
• Confident and accurate working with a CRM system, including maintaining data quality, running reports and using data to inform stewardship decisions
• Digitally confident and able to work effectively with an email platform, contribute to digital donor journeys and understand the principles of digital stewardship
• Highly organised and self-sufficient, with the ability to manage a varied and sometimes emotionally demanding portfolio of work in a small team environment
• A clear understanding of and commitment to income accountability - comfortable contributing to and reporting against individual giving income performance
• A genuine commitment to relationship-led fundraising and an understanding of the particular value of long-term donor stewardship in a cause with a close-knit, personally connected community
• Experience of legacy fundraising specifically, including legacy marketing and/or the administration of estates going through probate
• Experience of in-memory fundraising and working sensitively with bereaved families
• Experience of working in a small charity or with a cause community where supporters have a deep and personal connection to the work
• Familiarity with Donorfy or a comparable CRM system
• Familiarity with Mailchimp or a comparable email platform

Personal Qualities:

• Warm, empathetic and emotionally intelligent. Able to communicate with authenticity and sensitivity with supporters who have a deeply personal connection to Huntington's disease
• Resilient and pragmatic - comfortable with the breadth of a small team role and able to work independently without significant infrastructure around them
• Collaborative and collegial - a genuine team player who builds trust across the organisation and works openly across teams
• Proactive and curious - interested in understanding supporters more deeply and motivated by finding ways to improve their experience of Huntington’s Disease Association

Other:

• A satisfactory level of attendance.
• Experience of working in a modern digital workplace.
• A private and confidential workspace within your home. 
• Understand the benefits of diversity and inclusion and have a personal interest in finding solutions to increase diversity

Compensation & Benefits

• 25 days annual leave plus public holidays (pro rata for part-time staff)
• 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
• A pension scheme with 3% employer contribution
• Medicash scheme
• Travel-to-work scheme
• Flexible working approach
• Family forward policies
• Supportive and positive working environment
• Fantastic learning and development opportunities

Conditions of employment

• All applicants must have the right to work in the UK.
• Car owner with access for work purposes and hold a legal UK driving licence. Willingness to use public transport where more appropriate.

Working locations

• Hybrid model, working in the Liverpool office and remotely

How to apply

• Please, apply online and your application, and provide both a CV and cover letter outlining why you are applying for the role and how you meet the requirements of the person specification.
• Should you need any adjustments at any stage of the recruitment process, please contact us via [email protected] or 0151 331 5444

Interviews

• First round interviews will be held online on Thursday 3rd September 2026.
• Second round interviews will be held in person in Liverpool on Friday 11th September 2026

Policies

As an organisation, we value diversity, and we are committed to equal opportunities in our recruitment process. We collect monitoring data via a form sent to you following your application to ensure our recruitment processes are inclusive and reaching a diverse range of candidates. This will not form part of the selection process in any way; the data collected will be used for monitoring purposes only, and the completion of the form is voluntary. The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people.

We follow safer recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhanced disclosure before joining the charity. Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.

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