Project Coordinator/Operations Assistant

Axial Spondyloarthritis International Federation

Hours
37.5 hours per week

Length of contract
18 month

About the Organisation

Axial Spondyloarthritis International Federation (ASIF) is an international membership organisation representing patient associations supporting people living with axial spondyloarthritis (axSpA) worldwide. AxSpA is a painful, chronic inflammatory form of arthritis affecting approximately 1 in 150 people.

ASIF currently has 60 member associations across 48 countries and six continents. Our mission is to increase awareness and improve understanding of axSpA globally. We coordinate World AS Day each May and host a face-to-face Council Meeting every two years (next taking place in Athens, 7–10 October 2026). Founded in 1988, ASIF is a UK-registered Charitable Incorporated Organisation (CIO no. 1205000) with a small, fully remote staff team.

About the role

We are seeking an experienced and motivated Project Co-ordinator to support the delivery of a funded international research study. The project involves an ambitious global online survey of people living with axial spondyloarthritis (axSpA) and psoriatic arthritis (PsA), with participation anticipated in up to 60 countries.

The role will be split approximately:

• 70-80% project coordination
• 20-30% organisational and operational support

You will work closely with the Project Manager, international member organisations, external agencies, and scientific and steering committees. This is an exciting opportunity to contribute to a high-profile international study with real-world impact for people living with inflammatory arthritis, while working within a small, dedicated, and collaborative remote team.

As Project Co-ordinator, you will play a hands-on role in delivering all stages of the research project lifecycle from study set-up and ethics submissions through to recruitment, reporting, and dissemination. You will also provide operational support to ASIF’s wider work, including events, communications, and membership support.

Responsibilities

Project Set-Up:

• Support development of project plans, protocols, and standard operating procedures (SOPs)
• Organise and maintain the Trial Master File and core study documentation
• Prepare ethics submissions and liaise with ethics committees
• Develop clear information materials for patient organisations and participants
• Document study procedures for external agencies
• Source and document validated instruments for survey use
• Communicate study information clearly to diverse stakeholders

Country-Level Study Launch:

• Support survey kick-off meetings in participating countries
• Coordinate user testing of the online survey
• Establish recruitment monitoring systems and reporting processes

Recruitment:

• Monitor recruitment activity and identify risks
• Liaise with in-country contacts to support recruitment
• Track, analyse, and report participant numbers

Governance:

• Support Steering Committee and Scientific Committee meetings
• Act as a point of contact for committee members

Dissemination:

• Support the delivery of live and virtual events to share findings
• Coordinate report production and translations
• Liaise with academic partners on manuscripts
• Support abstract submissions to rheumatology congresses

General Operational Support:

• Event planning and coordination
• Website and social media support
• Supporting other projects
• Membership administration

Skills, Competencies, Experience & Attributes

Essential Experience:

• Experience working on a research project (ideally in healthcare or epidemiology)
• Supporting multi-stakeholder, multi-site, and international projects
• Maintaining complex project documentation
• Coordinating elements of research independently
• Using MS Office and digital collaboration, data, and videoconferencing tools

Essential Skills & Attributes:

• Excellent organisational and coordination skills
• Strong attention to detail
• Excellent written and verbal English
• Ability to build effective international relationships
• Ability to manage competing priorities
• Professional, diplomatic, and flexible approach
• Understanding of working within a small organisation
• Awareness of social media and communications

Desirable:

• Understanding of research ethics and informed consent
• Experience of working fully remotely and in a very small team
• Experience designing processes or data capture tools
• Awareness of the lived experience of inflammatory arthritis or other chronic conditions

Personal Attributes:

• Highly organised and detail-oriented
• Self-motivated and confident working remotely
• Comfortable managing multiple priorities
• Proactive in identifying issues and solutions
• Culturally sensitive and confident working internationally
• Flexible and willing to support a small team where needed

Working locations

• Home-based

How to apply

• Please submit your CV and a maximum two-page covering letter explaining how you meet the requirements of the role. Applications must be sent to [email protected]. The application deadline is 11th March 2026

Interviews

• Interviews: First interviews – 18th/19th March 2026 (online)
• The successful candidate will be asked to provide two references.

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