Programme Lead Integrated Support

Motor Neurone Disease Association

Hours
37 hours per week

About the Organisation

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families, and their carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so that the needs of people with MND, as well as everyone who cares for them, are recognised and addressed by the wider society.

About the role

As a Programme Lead - Integrated Support, you will guide the development of a new integrated support model, coordinating activity across seven connected work-packages and ensuring progress that is timely, focused, and grounded in real need. As the Programme Lead, you will work across teams to plan, align, and drive programme delivery. You will ensure each area of work is clearly structured, purposeful, and supported, while maintaining strong relationships across the Motor Neurone Disease Association.

Responsibilities

Main Responsibilities:

• Lead the planning, coordination, and delivery of projects that enable the design and implementation of an integrated model of care and support, working closely with the PMO Lead, Programme Director, and Senior Head of Integrated Support and Delivery.
• Collaborate with senior leaders, including the Senior Head of Integrated Service Delivery and the Head of Service Improvement & Transformation, to shape and execute strategic initiatives. Provide insight, analysis, and recommendations that inform long‑term objectives and support the growth and sustainability of the Association’s integrated support approach.
• Develop, implement, and maintain a coherent programme framework that enables effective prioritisation, resourcing, governance, and quality assurance of Integrated Support Model activities, ensuring alignment with organisational goals and standards.
• Foster a collaborative and inclusive programme culture, actively engaging colleagues, volunteers, and community stakeholders. Champion diverse perspectives and co‑production to enhance innovation, service effectiveness, and meaningful impact.
• Lead programme performance, evaluation, and reporting, working with Project Managers and relevant stakeholders to track progress against agreed metrics, extract learning, and embed continuous improvement across all programme activities.
• Oversee the end‑to‑end management of projects within the Integrated Support Model, ensuring delivery against defined objectives, timelines, budgets, and quality expectations.
• Identify, monitor, and manage programme risks, issues, and interdependencies, escalating where required to maintain momentum, protect delivery, and support informed decision‑making.
• Design and promote integrated, person‑centred approaches to care and support delivery, ensuring they reflect best practice, lived experience, and the Association’s mission and values.
• Carry out any other duties aligned to the role’s purpose, ensuring all work contributes to the Association’s overarching mission and core values.

Skills, Competencies, Experience & Attributes

Essential criteria

• Proven experience in leading the design, development, and strategic delivery of a diverse project portfolio, particularly in healthcare, non-profit, or service-driven organisations.
• Strong capability in ensuring high project standards, timely outcomes, and adherence to budgetary constraints across multidepartmental initiatives. Quality Improvement and Service Improvement Expertise.
• Demonstrated ability to advocate for and implement Quality Improvement practices, fostering organisation-wide engagement with service improvement initiatives.
• Ability to translate best practices and emerging trends into actionable programme frameworks that enhance service delivery and impact. Formal project management qualification (PRINCE2, APM, Agile).
• Experience developing programme frameworks that align with organisational objectives, with a focus on optimising resources, meeting timelines, and ensuring sustainability.
• Strong resource planning and financial management skills, including budget oversight, cost efficiency, and alignment with fiscal constraints.
• Proven success in driving a culture of innovation and continuous improvement across projects, with the ability to identify, develop, and implement enhancements that increase organisational impact

Compensation & Benefits

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
• Access to UK Healthcare, including dental, eye care, health screenings, and therapies
• 24/7 GP access via phone and video
• Life assurance and confidential counselling helplines
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
• Access to the Benefit Hub for discounts on everyday shopping
• Enhanced pension scheme
• Opportunities for training and personal development

Conditions of employment

• You need to be eligible to work in the UK

Working locations

• Home-based

How to apply

• Please apply via our website.
• To support an inclusive application process, we are open to receiving alternative applications from candidates who may find it difficult to complete our online form. If you would like to apply via video or audio file, please send your recorded application, ensuring you cover the supporting statement aspect, to [email protected]

Interviews

• Once we have shortlisted, we'll get in touch with all applicants to let you know if you've got to the next stage

Policies

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, including employees, volunteers, and stakeholders. As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

The information provided to the MND Association when applying for a vacancy will be treated in full accordance with the General Data Protection Regulation (GDPR). The MND Association is committed to protecting your personal information and being transparent about what information we hold, whether you are a donor, volunteer, shopper, campaigner, or a person living with or affected by MND. For more information, visit Privacy Policy

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